Brooke Eby, the Maryland-native turned ALS advocate who gained fame through a campaign of humor, honesty, and hope, passed away at 37 years old. The news of her death was released by The ALS Network on October 1, 2026, four years since she was diagnosed in March 2022.
A TikTok and Instagram star known as “LimpBroozkit,” Eby used humor along with her brutally honest approach to losing her mobility and ability to communicate in the face of ALS, a disease associated with old age and men.
Born December 22, 1988, in Potomac, Maryland, Eby graduated from Lehigh University and built a career at Salesforce. Symptoms first appeared around 2018 with tightness in one foot. Doctors missed the signs for years. The official ALS diagnosis came in March 2022 when she was 33.
Instead of stepping back, she leaned in. She launched the LimpBroozkit accounts months later and kept posting even as the disease progressed from walking aids to a wheelchair, then challenges with breathing, swallowing and speech. In one widely shared reflection she said,
“Levity is my superpower.”
In another she explained she wanted her videos to serve as a “visual diary” for anyone facing the same news.
Eby founded ALStogether, a peer support community that grew into a vital online hub for patients and caregivers. The ALS Network later integrated the group to expand its reach. Reports credit her with helping raise more than $1 million for research. In June 2026 the ALS Network gave her the Dean and Kathleen Rasmussen Advocate of the Year Award. Her response captured her style:
“I didn’t choose ALS, but I did choose to get loud, and be irreverent about it, so don’t worry, I’m not getting quiet anytime soon! I’m so grateful for this award because it tells me I’m helping in my own weird way.”
ALS Network President and CEO Sheri Strahl called her “an extraordinary advocate, storyteller, community builder and friend” who “changed the way people see ALS” and helped patients support one another. Salesforce co-founder Marc Benioff wrote on X that she was
“an amazing warrior with an attitude so positive it could melt a glacier.”
ALS is a progressive disease that attacks the nerves controlling muscles. Most people live two to five years after symptoms start. Eby’s younger age and public documentation challenged the usual picture of the illness and showed that it can strike anyone. She kept sharing updates until near the end, including declines in breathing capacity in 2025 and speech difficulties in 2026.
The true success of Brooke Eby lies in the community she created and the millions of people who came to know about ALS from her unfiltered posts. Her success proves that just one individual can make a difference in the perception of a difficult disease and its sufferers.
